Just over 1 year ago, our son Cooper was diagnosed with Kabuki Syndrome. It is our quest in life now to discover and uncover as much as we can about this rare disorder. We strive to network with those we don't know and educate those who do, and fight Cooper's fight. You can follow our discoveries and Cooper's progress as we learn more and more about Kabuki Syndrome.
Stay Posted and Take Care.
Hello! My name is Cath and I have a 2-year-old daughter with Kabuki Syndrome. I found you through Google blogger as I also keep a blog about our life with my daughter: http://cathfozbethany.blogspot.com/
ReplyDeleteI'd love to chat :-)
Cath xx
hi everyone, im paul and iv a stepson aged 5 (almost 6) called sean who also as kabuki syndrome, cath i sent a friend request on facebook today, love to chat, paul x
ReplyDeletethis is fantastic, I run a blog for an online sensory integration course, we have got some great success stories where we have helped, let me know if you are interested and i will give you the link to the blog (I don't want you to think I am a spammer
ReplyDeleteCheers
Amy
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